BeingSick · A global community of loving people who
understand what its like to be sick or care for a loved
one. "We are a community of loving supportive people
who understand what its like to be sick. We live with
illness, injury, disability, or care for those that do.
This group is a place where you are free to be yourself.
Share your frustrations about being sick, friendships,
family, and just about anything! We are the family who
understands when no one else does! We live your life too!
You are welcome to post in HTML, colors, send links, web
pages, poems, inspiration, e-cards, jokes, chat in our
chat room anytime! We are non-denominational, welcoming
all races, ages, religions and cultures. We know how tough
life is being sick, and we care. There is support for you
here anytime you need us. You are not alone." Yahoo!
group.
HIV Tampa Bay. "Welcome to HIV Tampa Bay, a new
group developed to help assist people infected and
affected by HIV and AIDS find information about living
with the disease. This group will also serve as a board
for updates to the
http://www.hivtampabay.net website."
Medconsumerinfo. "Medconsumer.info is your
starting point for searching the Web for medical
information. This forum exists for you to discuss, ask
questions, and answer questions about any aspect of
health, healthcare industry, and any aspect of being a
patient. Please take whatever advice you receive through
this forum to your doctor before changing or initiating
any medically-related behavior." Yahoo! group.
Med Help
Medical Specialty Forums (Message Boards).
Sexually Transmitted Diseases (STD) Forum.
"Questions in this forum are answered by H. Hunter
Handsfield, M.D., Professor of Medicine at the University
of Washington and Visiting Scientist at the Division of
STD Prevention, Centers for Disease Control and Prevention
(CDC), and an internationally acclaimed expert in clinical
aspects and prevention of STDs."
A directory of U.S. AIDS hotlines from The Body.
"AIDS hotlines are invaluable for basic HIV/AIDS
information. You can talk to someone knowledgeable about
HIV, and get referrals to various AIDS services in your
city or state. Typically, hotlines are open Monday through
Friday 9 to 5, with some also open evenings and Saturdays.
The National AIDS hotline in Washington, D.C. is the only
hotline open 24 hours a day, 365 days a year:
1-800-342-2437."
Hotlines
AIDS Treatment Information Service (ATIS) 1-800-HIV-0440
AIDS Clinical Trials Information Service
(ACTIS)1-800-TRIALS-A (1-800-874-2572)
AZT Information Hotline 1-800-843-9388
Center for Disease Control's National AIDS Clearinghouse
1-800-458-5231
HANDI Hemophilia and AIDS/HIV Network for the dissemination
of Information 1-800-424-2643. Available in English and Spanish.
Lesbian AIDS Project (LAPS) 212-337-3532
National AIDS Hotline 1-800-342 AIDS
National Gay and Lesbian Task Force 1-800-221-7044
National Institute of Drug Abuse 1-800-662-HELP National
Institutes of Health Clinical Center 1-800-AIDS-NIH (1-800-243-7644)
National Library of Medicine AIDS Databases: AIDSline,
AIDSdrugs, and AIDStrials 1-800-638-8480
Native American AIDS Information Hotline 1-800-283-2437
Project Inform 1-800-822-7422
Women's AIDS Network 415-821-7984
Women and HIV/AIDS - Women Alive 1-800-544-4876
Women and HIV/AIDS - Sister Connect 1-800-747-1108
Lawyers
Sarah Patterson.
"Sarah Patterson practices in Portland, Oregon and represented her first
Social Security disability claimant in 1983. Since then, she has represented
thousands of claimants in twelve states, focusing her practice exclusively on
Social Security disability and SSI cases, now specializing in claims involving
HIV and AIDS.
She is a member of the National Organization of Social Security
Representatives, and served as the elected board representative of the Ninth
Federal Judicial Circuit to that organization. She has served on many
nonprofit boards, and was an elected member of the Board of Governors of the
Kentucky Bar Association. Sarah began her career working for Legal Services in
Louisville, KY after graduating from the University of Louisville School of
Law and Marquette University."
Medications
AIDSMEDS.COM.
From Peter Stanley "I found out I was HIV positive in 1985, during the early
years of the AIDS crisis, before there were any treatments to fight AIDS. Talk
about scary. I was probably infected by the HIV virus a few years before that,
and was already having symptoms of a weakened immune system. My T4 cells had
fallen to around 350, and I had swollen lymph nodes. I didn't know what my
viral load was - the quantity of AIDS virus in my blood - because there were
no tests measuring HIV levels back then.
Fortunately, AZT was approved in 1987, and from then on, a steady flow of HIV
and AIDS treatments have been researched and approved. Today there are 20
drugs for the treatment of HIV and AIDS, and more are in the research
pipeline. But talk about confusing - the HIV virus is one of the most
complicated to treat, and many people don't even bother trying to learn about
their options. That's where this website comes in handy."
Multimedia
HIV Positive.
Warning, this Web site has annoying pop-up windows that will continue to make
noise while you are watching their videos. Additionally, because the Web
site has frames it is not possible to provide you links directly to the
videos. The Web site must be reached through their home page and then
you must click on the video library option. The videos appear squished,
but the information is valuable enough to overlook the Web site's problems.
AIDS101.COM. "AIDS 101 was
launched in October, 1999 by Antonella Pisani. With the support of Web sites
throughout the world, the site has grown at a steady pace since its inception.
This site was created to help spread information about a ravaging disease, and
to serve as a community for friends of people who are living with, or have
passed away from HIV/AIDS.
This site was inspired by a young man named Joey DiPaolo, who matched an
innocent face with a ravaging disease."
HIV-AIDS-Help-Desk.com.
"Clearinghouse specializing in HIV/AIDS related issues and resources, linking
visitors to a wide variety of products and services known to be of exceptional
quality and value."
Patient Published Web Sites
Marty Howard's HIV/AIDS Web
site. "This page is designed to help you find as much HIV/AIDS
related information as possible from one starting place. The links will take
you all over the U.S. and the world to many additional links where information
in English can be found. Please excuse the duplication found in different
areas.
A little background....I was 61 years old in June of 2003 and am HIV+
(infected in Sept. '85). I also have had a bout with Cancer. I had a Left
Radical Nephrectomy in July, 2000. Debbie, a first grade teacher, and I have
been married for 33 years..."
